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National Resources

Where do you get information for families when they have a concern about their child's hearing or are in need of resources?  Here are essential sources of information that you can provide to meet families' needs - just in time!

Communicate with Your Child CDC Parent Guide to Hearing Loss
Hands and Voices Hearing Loss Association of America
Learn American Sign Language Alexander Graham Bell Association for the Deaf & Hard of Hearing
My Baby's Hearing American Society for Deaf Children
National Center for Hearing Assessment & Management EHDI Pediatric Audiology Links to Services
Spanish Language Resources

Communicate with Your Child

http://communicatewithyourchild.org

  • Family-friendly information about what to do when their baby fails the hearing test, what to do if they are worried about their child's hearing
  • Print materials available: downloadable brochures and state-specific inserts
  • State-specific Contact Information available
  • Multiple Languages: Available in English, Spanish, Chinese, Tagalog, Korean and Vietnamese

Hands and Voices National

http://www.handsandvoices.org

hands and voices logo
  • A nation-wide parent-driven, parent/professional collaborative group
  • Provides unbiased information about communication modes and methods
  • Print materials available:  Resources for communication, assistive devices, early intervention and special education rights
  • State-specific Chapter Information available
  • Multiple languages: Some state pages are in Spanish and English


 

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Learn American Sign Language

http://signitasl.com/ Sign It American Sign Language made easy

  • SignIt ASL is an online curriculum that is provided at no cost to families with newborns diagnosed with hearing loss within the USA .
  • This is made available through their partnership with The National Center for Hearing Assessment and Management (NCHAM).

My Baby's Hearing

http://www.babyhearing.org  my baby's hearing logo

  • Developed by Boys Town National Research Hospital
  • Answers questions about infant hearing screening and follow up testing, steps to take after diagnosis of hearing loss, hearing devices, language & speech and parenting issues
  • This site is currently being updated and expanded so you will find a new look and new content in the near future
  • Multiple languages: Available in Spanish and English

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National Center for Hearing Assessment and Management

http://www.infanthearing.org 

  • Serves professionals within state Early Hearing Detection and Intervention systems
  • Provides important information for families needing to connect with their state EHDI program and other professionals
  • Family Support page provides links to family organizations that can help families of children with hearing loss
  • Print materials available: "Learning about Hearing Loss: A Roadmap for Famlies"
  • State specific information: lists state contacts for EHDI programs and other contacts for families

Centers for Disease Control & Prevention:
A Parent's Guide to Hearing Loss

A Parent's Guide to Hearing Loss logohttp://www.cdc.gov/ncbddd/hearingloss/parentsguide/

  • Features programs and services about understanding hearing loss & how hearing is tested; finding professionals with expertise in serving babies with hearing loss; fitting a baby with a hearing device, and family support groups
  • Information is available in Spanish and English
  • Information on genetics

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Hearing Loss Association of America:
Financial Assistance Programs & Foundations

Hearing Loss Association logohttp://hearingloss.org/content/financial-assistance-programs-foundations

  • Information about how to pursue financing for hearing devices via private insurance, Medicaid, Medicare and charities
  • State specific information: state regulations pertaining to laws covering hearing aids is provided

Alexander Graham Bell
Association for the Deaf & Hard of Hearing

Alexander Graham Bell logo

http://listeningandspokenlanguage.org/

  • Offers information about options and considerations on how to select a communication approach for their child
  • Especially useful for famlies using a listening and spoken language approach
  • Provides information and resources to help families learn how to provide access to communication as early as possible

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American Society for Deaf Children

http://deafchildren.org/ 

  • Oldest national organization founded by and governed by parents of deaf and hard of hearing children
  • Supports and educates families as well as advocates for high quality programs and services
  • First Year FREE membership available for families who have deaf or hard of hearing children
  • "Deaf Autism America" strives to enhance the quality of life for Deaf and hard of hearing children with autism

EHDI-PALS 

www.ehdi-pals.org 

Early Hearing Detection & Intervention - Pediatric Audiology Links to Services, a web-based link to information, resources, and services for children with hearing loss. At the heart of EHDI-PALS is a national web-based directory of facilities that offer pediatric audiology services to children who are younger than 5 years of age.


Spanish Language Resources for Families & Children who are Deaf or Hard of Hearing

Hands & Voices (Manos y Voces): Unbiased parent-to-parent support and Spanish-language resources for families and children who are deaf or hard of hearing.

American Speech-Language-Hearing Association (La Asociación del Habla, Lenguaje y Audición): The organization provides Spanish-language information for the public and families with children who are Deaf or hard of hearing.

Alexander Graham Bell (Listening and Spoken Language Knowledge Center in Spanish): Resources for advancing listening and spoken language for individuals who are Deaf or hard of hearing.

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